Introduction: Can you tell us a little about yourself and your role as a Lymphedema therapist?
I became a certified lymphedema therapist in 1996 after receiving a phone call from a breast cancer support group asking if any of the physiotherapists at the clinic I owned treated lymphedema. At that time the answer was no, and there was very little information or resources available. My mother had gone through breast cancer treatment so I was immediately interested and began researching how to help people with lymphedema .
Inspiration: What inspired you to specialize in treating lymphedema?
After receiving that phone call and learning that there was so little available treatment or help for people trying to manage lymphedema I immediately was interested in learning more. I was so fortunate to have Guenter Klose as my Instructor and he became my mentor which was invaluable since there were not a lot of other people with knowledge about how to manage lymphedema at that time. Patients were so grateful for any help they could get it quickly became very rewarding.
3. What made you join the BCLA? What value has it brought to your practice in the last xx years?
The BCLA has become invaluable as a resource to refer people to and it continues to become even more valuable as they expand their website and learning opportunities. It is often the first valuable resource in the province that people can access to get started when trying to learn how to get help in managing their lymphedema. The Advocacy Committee has been working tirelessly lobbying the Ministry of Health to get access to treatment and in particular compression garments for anyone diagnosed with lymphedema. I am hopeful someday this will happen.
4. Treatment: What types of treatment or therapies do you usually use to help patients manage LE?
All four components of CDT, manual lymph drainage, compression, meticulous skin care, and remedial exercise.
5. Memorable Moment: Can you share a memorable experience with a patient that had a strong impact on you?
There are many but one that stands out is a woman who travelled a lot for work and had a demanding job. She had significant lymphedema in her arm, and despite every effort had been unable to learn how to manage it properly. Every time she became overly exhausted and stressed with work, she developed cellulitis in her arm that would lay her up for several days. This was happening twice a year.
Once we managed her arm using all components of CDT her episodes of cellulitis resolved, her limb size decreased significantly and she learned how to manage her lymphedema very well independently.
6. Advice: What advice would you give someone who has just been diagnosed with lymphedema?
First, please don't panic, lymphedema can be managed well but early diagnosis is important. Fortunately, there are more therapists in British Columbia becoming Certified in lymphedema management (in part due to the generous scholarships being offered by the BCLA). The BCLA website lists the certified lymphedema therapists, compression garment fitters and suppliers in the province. If there is no one in your immediate area to see in person, I suggest starting with a virtual appointment with a lymphedema therapist to help you get started. Many clinics in the province will offer this.
Written by: Janet Sprague