Links are listed in alphabetical order

(***New links added: November 2010***)

ALBERTA LYMPHEDEMA ASSOCIATION (ALA)

www.albertalymphedema.com/

The Alberta Lymphedema Association (ALA) is a not-for-profit charitable organization founded in 2003 by a team of people who recognized the need to help people living with, or who are at risk for lymphedema.  ALA consists of patients, doctors, nurses, lawyers, therapists, garment fitters and family members.  They are dedicated to providing resources and information, promoting education, increasing awareness and offering support to those affected by primary or secondary lymphedema.

AMERICAN LYMPHEDEMA FRAMEWORK PROJECT (ALFP)

www.alfp.org/

A collaboration of healthcare providers, researchers, patients, and industry representatives, the ALFP will develop and evaluate appropriate health care services for patients with all forms of lymphedema and advance the quality of lymphedema care both in the United States and worldwide.

CANADIAN LYMPHEDEMA FRAMEWORK PROJECT (CLFP)

www.canadalymph.ca/

The mission of the Canadian Lymphedema Framework is to work to improve the management of lymphedema and related disorders in Canada.

CHILDREN WITH LYMPHEDEMA (Yahoo Group)

http://health.groups.yahoo.com/group/childrenwithlymphedema/

Support group for parents, families and caregivers of children with lymphedema.  Sharing information on coping, diagnosis, treatment and prognosis.

ELYMPHNOTES

www.elymphnotes.org/

An online magazine on issues related to lymphedema, published bi-annually by the Lymphedema Awareness Foundation in Florida.

FLINDERS' UNIVERSITY LYMPHEDEMA PROJECT

www.flinders.sa.gov.au/lymphoedema/

More information about the Vital Essence project at Flinders University, initiated by Prof. Neil Piller.

INTERNATIONAL LYMPHOEDEMA FRAMEWORK PROJECT

www.lympho.org/

The aim of the International Lymphoedema Framework is to develop and evaluate appropriate health care services for patients with all forms of lymphoedema in countries throughout the world.  Central to framework is partnership and collaboration at a number of levels.

INTERNATIONAL SOCIETY OF LYMPHOLOGY

www.u.arizona.edu/~witte/ISL.htm

Advance and disseminate knowledge in the field of lymphology and allied topics

LYMPHOLOGY ASSOCIATION OF NORTH AMERICA (LANA)

www.clt-lana.org/default.asp

The Lymphology Association of North America (LANA) is a non-profit corporation composed of healthcare professionals, including physicians, nurses, massage therapists, physical therapists, and occupational therapists experienced in the field of Lymphology.

THE LEBED METHOD

The Lebed Method is committed to the development and education through therapeutic exercise of those with upper and lower lymphedema and to help prevent loss of quality of life for the patients.  It is a therapeutic exercise program for women and men who have any kind of lymphedema.  Two physicians and a dance movement specialist created this program.

LYMPHATIC RESEARCH FOUNDATION

www.lymphaticresearch.org/main.php?content=home

A non-profit corporation whose mission is to help identify, support, and promote research into the causes, treatments, and potential cures for lymphedema and angiodysplasia disorders.  Produce a journal: Lympholgy Research and Biology.

LYMPHEDEMA ASSOCIATION OF ONTARIO

www.lymphontario.org/

The Lymphovenous Association of Ontario was founded by a small group of lymphedema patients and their families in 1996.  Originally intended as a support group for patients, it has grown to provide core programs and services to lymphedema patients, those at risk for lymphedema, lymphedema treatment professionals and other health care providers.

LYMPHEDEMA ASSOCIATION OF QUEBEC (LAQ)

www.infolympho.ca/

The LAQ, a non-profit charitable association was established in 1999, in order to raise awareness about lymphedema, its causes and its treatments.  The association is comprised of individuals directly affected by lymphedema, as well as their families, friends and health care professionals.

LYMPHEDEMA FAMILY STUDY

www.pitt.edu/~genetics/lymph/

The goal of this project is to identify genes responsible for primary lymphedema.  It is their hope that a new understanding of the genetic basis of inherited lymphedema will provide insight into its treatment and contribute to early identification of individuals at risk.  This study does not involve diagnosis or treatment of lymphedema, and it was not designed to provide any direct benefit to the participants.  However, it is our hope that it will benefit many lymphedema patients in the future.

LYMPHEDEMA PEOPLE

www.lymphedemapeople.com/

A website dedicated to people who experience all types of lymphedema.

LYMPH NOTES

www.lymphnotes.com/

Lymph Notes is a helpful resource for therapists and patients because it is a resource therapists can refer patients to find answers to common lymphedema related questions, plus news about recent lymphedema related developments.

LYMPHOVENOUS CANADA

www.lymphovenous-canada.ca/

The purpose of this site is to link people in Canada with dysfunctional lymphatic systems with health care professionals and support groups in their communities and around the world.

McGILL LYMPHEDEMA RESEARCH PROJECT

www.mcgill.ca/lymphedema-research/

A Canadian, university-based research project under the guidance of Dr. Anna Towers involving Dr. Vodder school-certified therapists.

NATIONAL LYMPHEDEMA NETWORK

www.lymphnet.org/

The National Lymphedema Network (NLN) is an internationally recognized, non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.  The NLN is supported by tax-deductible donations and is a driving force behind the movement in the USA to standardize quality treatment for lymphedema patients nationwide.  In addition, the NLN supports research into the causes and possible alternative treatments for this often incapacitating, long-neglected condition.

NORTHWEST LYMPHEDEMA CENTER

www.nwlymphedemacenter.org

The Northwest Lymphedema Center's mission is to help you understand and manage the challenges of lymphedema through our online self-care videos and our quarterly classes held in Kent, WA.

NORTH AMERICAN VODDER ASSOCIATION OF LYMPHATIC THERAPY (NAVALT)

www.navalt.org/

The purpose of NAVALT is to promote acceptance, throughout North America, of Manual Lymph Drainage according to Emil and Estrid Vodder.  NAVALT is dedicated to the advancement of the Vodder Method through quality education, and research.

*** SASKATCHEWAN LYMPHOVENOUS LEARNING ASSOCIATION (SLLA) ***

www.sasklymph.ca

The SLLA is a non-profit organization founded in 2004 by a group of people who recognized the need to help those who have, or are at risk of developing lymphedema and related lymphatic disorders. We strive to be a learning association, committed to ongoing education. SLLA works to empower affected individuals and their families to successfully manage these conditions.