00  BC Lymphedema Association

   GOALS   

  • We build awareness across BC and provide information about lymphedema and the available treatment/management options.
  • We advocate on behalf of people and families affected by lymphedema.
  • We encourage patients to take an active role in their rehabilitation.
  • Our key stakeholder groups know us, respect us, and promote us for our unbiased, professional conduct.
  • We encourage and support local, national, and international lymphedema research and development.

The BC Lymphedema Association is here to support people living with lymphedema. Many of the calls we have received to date are asking medical questions. We are not able to provide medical advice! We can offer information about ways to manage lymphedema. If you become a member, you will be able to view the MEMBERS ONLY section where suppliers and therapists are listed.


This organization is run by volunteers only - there are no paid staff members. The organization exists by Memberships and Donations only.  If you or someone you care about has lymphedema, please join with us to help bring lymphedema care to the forefront by educating and advocating for better care for this condition in BC.



Donate Now Through CanadaHelps.org!

Registered Charity
#828294926 RR0001

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Following are 2 online events that you can take part in next week on Wednesday May 22, 2013:

1) Presented by the Canadian Cancer Survivor Network (CCSN), this webinar is an introduction to advocating for the care and follow up of cancer patients and survivors.

2) The Lymphatic Research Foundation is offering the livestream the Symposium, Overview of Surgical Treatment For Lymphedema.
Featured Speaker: Dr. David W. Chang, MD.

The only drawback is that both of these online events will be taking place at the same time: 12:00 noon Pacific Time.
You need to register for the 1st one so they can send you the link to participate as well as login instructions.
The 2nd one has the link in the information bulletin below that you can click to join at noon next Wednesday.

*For those of you who participate in either of these
presentations, we invite you to send a summary of them to us so we can share the information gleaned with everyone living with Lymphedema and the Practitioners and Fitters who work with them.

1)

CCSN’s third advocacy webinar is on Wednesday, May 22!

Advocacy Overview: Shaping the Advocacy Agenda

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Wednesday, May 22, 3 PM EST

This free introduction to advocacy will interest patients, survivors, family, friends, caregivers, and any member of the community interested in the best possible care and follow-up for cancer patients and survivors.

  • You will be provided with an overview of advocacy and why it is important to use advocacy to make change.
  • You will be introduced to the step-by-step process to create an actual advocacy plan that you can then use in support of your issues.
  • You will understand better how to use advocacy tools specifically in the context of interacting with governments.

The impact of volunteering and taking positive action to effect change are important elements in the transition to post-treatment life.

 

Most cancer survivors feel there are some aspects of their cancer care and post cancer experiences that could be improved but do not know how to go about it.


Take this free opportunity to obtain insight and information from Ryan Clarke, the President of Advocacy Solutions, who is committed to providing a voice to organizations and individuals through the development and implementation of impactful advocacy strategies.


Ryan has spoken about advocacy across Canada and internationally, teaching and training thousands of people on how to make their voices heard.


How to register:

 

Please note that this webinar is being held on Wednesday, May 22 at 3 PM EST.

 

To participate, you will need to register by first sending an email to jmanthorne@survivornet.ca. CCSN will then email you the link for participating in the webinar and login instructions.

Canadian Cancer Survivior Network
1750 Courtwood Crescent, Suite 111
Ottawa, ON K2C 2B5
Telephone: 613-898-1871
Email: info@survivornet.ca
Website: www.survivornet.ca
Blog: http://jackiemanthornescancerblog.blogspot.com/
Twitter: @survivornet.ca
Facebook: http://www.facebook.com/CanadianSurvivorNet

This eletter will be published once a month. Occasional alerts may also be sent.

You are receiving this newsletter because you subscribed to it. If you are no longer interested in receiving it, please click below to unsubscribe.

If you received this eletter from a friend or colleague, you can subscribe by sending a message to info@survivornet.ca or by going to the front page of our website at www.survivornet.ca and signing up. News and involvement opportunities are always being added.


_______________________________________________________________________

2)

LRF Logo



Upcoming Symposium: Overview of Surgical Treatment for Lymphedema
Featured Speaker: David W. Chang, M.D.
 

Dr. David W. Chang, M.D. Dr. David W. Chang is a professor with tenure and the Deputy Department Chair in the Department of Plastic Surgery, Director of the Center for Plastic and Reconstructive Surgery, and Director of the Center for Microsurgery Research & Education at The University of Texas M.D. Anderson Cancer Center in Houston, Texas.

Dr. Chang specializes in complex microsurgical reconstructive surgery in cancer patients, with a primary clinical and research focus of breast reconstruction and restoration of extremity defects such as lymphedema. He has been named to Best Doctors in America every year from 2001 to 2012. Dr. Chang has over 100 publications and has been invited to lecture at over 80 symposiums and meetings, both nationally and internationally. Dr. Chang has given over 40 visiting-professor lectureships in 25 countries.

Dr. Chang's symposium, Overview of Surgical Treatment for Lymphedema, will be livestreamed from Houston, Texas, on May 22, 2013, at 2:00pm CDT (3:00pm EDT, 1:00pm MDT, 12:00pm PDT).

Please mark your calendar for May 22 and join us at this link: 
 
Support provided by: 
MD Anderson Cancer Center logo   
Call (516) 625-9675 if you have any questions about joining this live event online. 

 
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LYMPHATIC RESEARCH FOUNDATION        

261 Madison Avenue, 10th floor, New York, NY 10016
40 Garvies Point Road, Suite D, Glen Cove, NY  11542  
www.lymphaticresearch.org | 516-625-9675


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Our AGM was well attended and we were able to complete all the business at hand in a timely manner.
The AGM minutes, President's Message and unaudited financials have been posted.




Be heard by Politicians via this link:
Letter to Honorable Dr. Margaret MacDiarmid.doc
Make sure you send it either by email or regular mail.

**DATA DVDs are now in.** Order yours here:
DVD of 'Creating Pathways in Lymphedema Care'


Since we are unable to set up a 'store' on the website at this time, we have had to set it up as an event. The corresponding emails you will receive reflect this.



* Nominations for BCLA Board Members being accepted:

  • Secretary
  • Vice-President
  • Directors
Do any of these positions sound like they would fit for someone you know? Then please nominate them.
Does one of these positions appeal to you? Self-nominations are accepted as well.
Join the BCLA Board and help provide a voice to those living with Lymphedema!
Send us an email so we can start the process.
 

* Volunteers Needed:

  • Membership Coordinator
  • Fundraising Coordinator
If you can help in either of these positions and/or for more information about them, please contact us.

* Navigating the Website:

* Logging On For 1st Time:
Enter the email address & password you used to join BCLA. If you cannot remember that password or if it doesn't work, click on 'Forgot my password' and follow the instructions. When you have your password, sign in using it.

* Renewing Your Membership:
Log in using your email address & password. In left hand column at the bottom, click on 'View your profile.' Click on the tab to the right that says 'Renew until (date of renewal the following year, ie. August 1, 2012)' and follow the instructions. Please update any new contact information.



 
 

BC LYMPHEDEMA ASSOCIATION (BCLA)

#215 - 5589 Byrne Rd, Burnaby, BC  V5J 3J1

1-866-991-BCLA (2252)

info@bclymph.org

Disclaimer: This site is for information and community support only, and should not be used as a substitute for professional medical care. Always seek the advice of your physician with any question about a health problem or medical condition. This site also includes links to websites providing information about lymphedema, but the BCLA cannot be responsible for the content of those sites.

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